The F-words in Childhood Disability: A Call for ACTION – Bringing parents, clinicians and researchers together

Last modified by Doug Maynard on 2016/05/19 22:27

Synopsis

“The F-words in Childhood Disability: I swear this is how we should think!” was published 3 ½ years ago; since then we have been on a knowledge translation (KT) journey around the globe. To date, the article has had close to 1,400 downloads; there have been over 50 local, national, and international presentations; and the video has received over 2,000 views. Researchers, clinicians and families have found common ground in this holistic approach and are now working together to move these ideas into practice.  This webinar is organized as a panel discussion involving parent, clinician, and researcher representatives. The panel will share their unique perspectives on the F-words and strategies for implementing the F-words in practice. 

Click here to learn more about CanChild Centre for Childhood Disability Research

Click here to learn more about Grandview Children's Centre

Click here to learn more about Tiptoe Through the Tulips

Resources

F-Words Presentation Slides

F-Words Awareness Poster

Presenters

Peter.jpgPeter Rosenbaum

Peter Rosenbaum, MD, FRCP(C) is the Co-Founder of CanChild and a Professor of Paediatrics at McMaster University. He held a Tier 1 Canada Research Chair from 2001 – 14. Dr. Rosenbaum has held over 80 peer-reviewed grants; is a contributing author to over 320 peer-reviewed journal articles and book chapters. His research interests include studies of the processes of care research program, the evaluation of family-centred functional approaches to care, how to describe and measure functional status and the development and implementation of a database system for gross motor disability.

JanWillem.jpgJan Willem Gorter Jan Willem Gorter, MD, PhD, FRCP(C) is the Director of CanChild Centre for Childhood Disability Research, and Professor in the Department of Pediatrics. He holds the Scotiabank Chair in Child Health Research at McMaster University, Hamilton, Canada. Jan Willem has clinical training in rehabilitation medicine (physiatry) with a special interest in transition services for youth with developmental disabilities. His research at CanChild focuses on the themes of family, function and fitness and includes clinical studies and health services research.










Maria.jpgMaria SusiniMaria has a M.Sc. PT from the University of Indianapolis.  She works at Grandview Children’s Centre as a physiotherapist and comes with over 20 years experience working in pediatrics.  As well, she has been teaching part time at Centennial College in the Occupational Therapy and Physiotherapy Assistant program for the past 4 years.









Julie.jpgJulie BrocklehurstJulie is a writer, an advocate and a mother to a little boy with cerebral palsy.  She created her blog, ‘Tiptoeing Through’, as a place to share some of her thoughts and feelings about life, love and the unexpected journey of raising a child with special needs. Julie’s writing focuses on how she has been able to create a beautiful life with her family. Her blog has become a resource for other parents, offering support and bringing hope and encouragement to the special needs community. Julie is a Director on the Board of the Cerebral Palsy Association of NL, and she runs a child care program for children with disabilities. 

Andrea.jpgAndrea Cross 

Andrea, MSc. is a PhD Candidate at CanChild and in the School of Rehabilitation Science at McMaster University. Her doctoral research focuses on family-research partnerships and knowledge translation. Working with a team of CanChild researchers and family partners, Andrea’s doctoral thesis aims to translate health research knowledge directly to families and support the uptake of a holistic and health affirming approach to childhood disability.